Injustice and inequality in the provision of perinatal palliative care.

Perinatal palliative care (PnPC) is a relatively new branch of pediatric palliative care (PPC), which focuses on providing holistic care in the antenatal, delivery, and neonatal settings. In this paper, we address previously unexplored justice-based ethical questions related to the provision of PnPC. We examine why some families who receive the diagnosis of a potentially life-limiting condition in their baby before or after birth receive PnPC support whilst others do not. We describe current inequities in the access to, and delivery of, PnPC. Drawing on philosophical theory (the Capabilities Approach) we argue that palliative care represents a valuable capability for babies with life limiting illness and their families. Health professionals should advocate for and promote access to this option for all families, regardless of whether it is ultimately taken up.